What type of information is most helpful?
Each question has a series of prompts. Please address any of the prompts that you feel are important and describe any other relevant issues that are not captured in the list of prompts. You are not expected to consider or go into depth with every single prompt.
Describe experiences at different stages of the condition/disease (and if applicable differences in the severity of the disease), with a particular focus on symptoms in terms of their impact and how well they are currently managed with existing treatments.
Where possible, please provide clear facts, information and summaries of experiences that give a concise, accurate and balanced overview of a range of patients’ perspectives.
Where possible, for any of the sections in the template for which there are groups that should have special consideration, please indicate the specific needs/issues of that group (e.g., children, women/men, ethnic groups, those living in a particular location, those with other disabilities, disease subtypes).
State the source(s) of your information (e.g., web survey, helpline analysis, social networking, focus groups, patients’ records, one-to-one conversations with those who have experience with a technology, patient stories, research studies, etc.) and provide clear references where they are available.